Hello there it has been quite a while since I sat down to write and was able to find the words. There are moments in life when everything changes — not slowly, but all at once. For me, that moment came with a diagnosis: my spouse was diagnosed with DSP gene and now heart failure. As if parenting five young children (all under 9) wasn’t already a full-time, round-the-clock commitment, we also adding learning to navigate life with a medically complex baby whose needs since her pregnancy have been, complex, constant, and consuming. She is a joy to our family and bring us much happiness and we are so thankful that she chose us to be her family.
This isn’t the life we planned — but it’s the one we’re living, and somehow, through the chaos, we’re finding our way. I am hopeful that I will be able to begin posting more frequently, as I have always found that putting my words down has been helpful in navigating the complex emotions that come with life’s unexpected challenges. I am also hopeful that sharing some of my struggles and the little wins that come with this life that I can help others.
